Resources

Guidebook

• OPTN/UNOS guide for pediatric parents – What Every Parent Needs to Know

Transplant-Related Organizations and Websites

• American Heart Association (AHA)
• American Society of Transplantation (AST)
• British Transplant Society (BTS)
• Canadian Society of Transplantation (CST)
• Canadian Transplant Association (CTA)
• Children’s Cardiomyopathy Foundation (CCF)
• Children’s Organ Transplant Association (COTA)
• David Foster Foundation (DFF)
• International Pediatric Transplant Association (IPTA)
• International Society for Heart and Lung Transplantation (ISHLT)
• National Foundation for Transplants
• Transplant Families
• Transplant Recipients International Organization (TRIO)
• Trillium Gift of Life Network
• United Network for Organ Sharing (UNOS)
• World Transplant Games Federation

Adjustment and Coping Websites

• Band Aids and Blackboards
• Experience Journal
• Mind Your Mind
• Sibling Support

Transition

• MyHealthPassport

Food Safety

• Canadian Food Inspection Agency food recalls and allergy alerts
• Canadian Partnership for Consumer Food Safety Education
• Food Safety for Transplant Recipients (FDA/USDA/CDC)
• Canadian Food Inspection Agency – Additional useful Food Safety Tips
• USDA and Partnership for Food Safety Education

Quit Smoking

• The American Lung Association