Research Committee

The Research Committee is responsible for

  • To build on the current infrastructure and success of the registry to improve care of patients and families

Committee Lead


Kevin P. Daly, MD

Boston Children’s Hospital

Ashwin Lal, MD

Primary Children’s Utah

Daphne T. Hsu, MD

Children’s Hospital at Montefiore

Clinical Trials Expert:

Christopher S.D. Almond, MD, MPH

Stanford Children’s

Bench-to-Bedside Expert:

Simon Urschel, MD

Stollery Children’s Edmonton

Committee Members

Nancy Halnon, MD


Benjamin Mantell, MD, PhD


Shahnawaz Amdani, MD

Cleveland Clinic

Kriti Puri, MBBS

Texas Children’s Hospital

Micheal Kuhn, MD

Loma Linda Medical Center

Estela Azeka, MD, PhD

University of São Paulo Medical School, Brazil

Joseph Rossano, MD


Lakshmi R. Gokanapudy Hahn, MD

Wash U./St. Louis

Hugo Martinez, MD

Le Bonheur, University of Tennessee

Karthik Ramakrishnan, MD

Le Bonheur, University of Tennessee

James Kirklin, MD


Ryan Cantor, PhD