About the Foundation

The PHTS Foundation was established in 2010 as a 501(c) (3) non-profit organization dedicated to raise and administer funds to advance the science and treatment of children while listed for and following heart transplantation. The PHTS Foundation supports the good works of the Pediatric Heart Transplant Society (PHTS).

The Pediatric Heart Transplant Society (PHTS) is dedicated to the advancement of the science and treatment of children during listing for and following heart transplantation. Although there are 500 transplants a year, any individual center may only do a few and even the largest centers rarely do more than 20. It is essential that each center’s experience and information is collected together, analyzed and the lessons learned passed on to everyone to advance the knowledge and improve the treatment of children’s transplants. The purposes of the PHTS are to establish and maintain an international database for heart transplantation, to use the database to encourage and stimulate basic and clinical research in the field of pediatric heart transplantation, and to promote new therapeutic strategies.

Mission

The PHTS Foundation’s mission is to raise and administer funds to advance the science and treatment of children while listed for and following heart transplantation. The Foundation supports the good works of the Pediatric Heart Transplant Society (PHTS).

Fast Facts:

  • There are about 500 pediatric heart transplants every year world-wide.
  • Most infants (< 1 year old) that get a transplant have congenital heart disease.
  • Most older children that get a heart transplant have cardiomyopathy.
  • Increasing numbers of children are getting supported by a mechanical device to wait for a heart transplant (14% in 2011 worldwide, 30% in North America).
  • Survival continues to improve after a pediatric heart transplant. Over 80% of children are alive 5 years after their transplant. For babies, over 50% are alive 19 years after their transplant.
  • About 30% of patients have rejection that needs to be treated in the first year after the transplant.
  • Coronary artery vasculopathy (narrowing of the coronary arteries) is still the biggest cause of death long term after the heart transplant.
  • There is a lot to learn about problems after a heart transplant in children to improve quality of life and survival of these patients.

Board of Directors

Officers

Elfi Pahl, MD
Chair
Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, IL
epahl@northwestern.edu

Heather Henderson, MD
Vice Chair/Secretary
Medical University of South Carolina
Charleston, SC
hendhea@musc.edu

Marc Richmond, MD
Past Chair
Columbia University – Morgan Stanley Children’s Hospital of New York Presbyterian
New York, NY
mr2306@cumc.columbia.edu

Jennifer Conway, MD
PHTS President
University of Alberta
Edmonton, Alberta
jennifer.conway2@albertahealthservices.ca

James Kirklin, MD (Ex-Officio)
University of Alabama at Birmingham
Birmingham, AL
jkirklin@uabmc.edu

Stephen Collum, MPH (Ex-Officio)
Executive Director
University of Alabama at Birmingham
Birmingham, AL
phtsfexecutivedirector@gmail.com

Rebecca Ameduri, MD
Mayo Clinic
Rochester, MN
Ameduri.Rebecca@mayo.edu

Michael Kuhn, MD
Loma Linda University Medical Center
Loma Linda, CA
mkuhn@llu.edu

Jay Fricker, MD
University of Florida, Shands Hospital
Gainesville, FL
frickfj@ufl.edu

Maryanne Chrisant, MD
Joe DiMaggio Children’s Hospital
Hollywood, FL
mchrisant@mhs.net

William Dreyer, MD
Texas Children’s Hospital
Houston, TX
wjdreyer@texaschildrens.org

Mariah Strickland, MSN, CPNP–AC/PC, CCTC
Children’s of Alabama
Birmingham, AL
mariah.strickland@childrensal.org

Mike Paseornek
Lion’s Gate Entertainment
Santa Monica, CA

Resources

Resolutions
Click here for the Foundation Resolutions.

Articles of Incorporation
Click here for the Articles of Incorporation.

Bylaws
Click here for the Bylaws of the Foundation.

PHTS Foundation W9
Click here for the completed PHTS Foundation W9.